Monday, 22 June 2026
14:00–15:30 CEST
Register here: https://events.teams.microsoft.com/event/386a430b-8ac2-4df7-a128-306b17e94cc2@c96b8cef-25b4-4f8e-8e11-28fff2720117
The European Health Data Space (EHDS) is creating new rights for EU citizens to access, download and share their electronic health data. For people living with complex, chronic or age-related conditions who depend on integrated long-term care, these rights could help transform how care is coordinated and experienced.
Yet in practice, health, social and informal care data often remain fragmented across different systems, organisations and settings. Legislation alone will not guarantee better integration unless digital tools, regional implementation and patient engagement are designed around the real needs of people and carers.
This 90-minute Laurel webinar will explore what patients and informal carers need from digital data sharing in integrated long-term care, and how citizen-controlled data tools can support continuity, coordination, empowerment and trust. It will bring together regional experience, European innovation and patient perspectives to examine how EHDS rights can move from policy commitments to everyday practice.
More than a discussion, this session will consider how tools such as digital care planning, citizen-mediated data sharing and patient education can contribute to more integrated, person-centred long-term care systems across Europe.
Join us to explore how data rights, digital tools and meaningful engagement can help make integrated long-term care work better for citizens, carers and care systems.
What You’ll Learn
- How EHDS rights relate to integrated long-term care and the needs of people living with complex care needs
- How regional approaches, including Flanders’ Alivia and Caring Neighbourhoods initiatives, are supporting person-centred integrated care
- What meaningful patient and carer engagement looks like in the context of digital health, EHDS and integrated long-term care
Speakers
Hanne Vuegen, Expert eHealth & EHDS, Flemish Government – Department of Care
Hanne is an Expert in eHealth working within the Belgian healthcare ecosystem, with a strong focus on data interoperability and digital transformation. Based in Flanders, Belgium she contributes to national and European initiatives that aim to improve the secure exchange and reuse of health data across care providers and borders. Her work includes involvement in programmes related to HL7 FHIR and the development of scalable health data infrastructures. She is passionate about building collaborative ecosystems that strengthen healthcare quality, efficiency and integrated care in Belgium and across Europe and contributing to sustainable digital health systems for citizens.
Michael Strübin, Digital Health Specialist, EHTEL
Michael Strübin is responsible for the xShare project’s Open Call process for early adopters of the xShare Yellow Button, a one-click solution for individuals to share their health data securely across systems. He has been contributing to the xShare project since he joined EHTEL in 2024. An accomplished EU digital health policy expert, Michael worked for global interoperability initiatives and advocated for the adoption of open standards and specifications, bridging the gaps between industry, policymakers and stakeholders. More recently he helped European industry trade associations to build consensus positions around key EU policy initiatives, and to represent the commercial sector vis-à-vis policymakers and stakeholders. Currently, Michael delivers advice and services for various clients and organisations as an independent consultant in Brussels.
Mitchell Silva, EUPATI
Mitchell is a trained EUPATI Fellow and active EUPATI representative. Mitchell brings both scientific rigour and deep human-centred thinking to the evolving role of patients as partners in health innovation.Mitchell Silva is a biomedical engineer (PhD) and patient engagement strategist with over a decade of experience bridging the worlds of life sciences, pharma, and patient communities. As co-founder of Esperity, he has also worked extensively with patient organisations, hospitals, and pharmaceutical companies across Europe to design digital tools and to embed the patient voice into healthcare decision-making and research design.